Craniosynostosis

Our Pediatrician is concerned that Harper may have a rare condition that affects 1 in 2500 babies called Craniosynostosis. Basically it means the baby's head fused together more quickly than it should have, and has to be corrected because the skull cannot grow normally. The doctor thought this because she has a ridge in the middle of her forehead and she thought her forehead appeared narrow. We will find out on Monday if she does have this abnormality, and if so she will be scheduled for surgery on her skull. We will be meeting with Neurosurgeon Ruth Bristol Monday for an xray. We are concerned and scared because of the google images of this condition and because Harper would have to endure surgery, have her pain managed, and be hospitalized in the ICU. Once again, Please keep our little cakes in your thoughts and prayers. Thank you so much.

 

Harps and dad before discharge from the nicu.